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Wrexham boy with rare condition takes centre stage at the Royal Variety Performance

Published date: 07 December 2016 |
Published by: Jonathan Grieve 
Read more articles by Jonathan Grieve  Email reporter


 

A brave little boy who suffers from one of the world’s rarest genetic conditions took to the stage in a star-studded performance expected to be watched by more than 150 million people worldwide.

Dyfan Wynne, 12, who attends St Christopher's School in Wrexham, took on a starring role in the Royal Variety Performance at London's Hammersmith Apollo, appearing alongside McFly star Tom Fletcher, who was reading from his new children’s book The Christmasaurus.

The Christmasauras is a story about a boy called William Trundell and a dinosaur, the Christmasauras, and how they meet one Christmas Eve and have a magical adventure.

Dyfan attends a drama group outside school and put together a video for a casting agent from London.

And out of a shortlist of four, Dyfan was chosen to star as William Trundell in the star-studded show, which will also feature performances from the legendary Barry Gibb and Sting, superstars Gary Barlow and Robbie Williams, the award-winning Sheridan Smith and Emeli Sandé, plus this years Britain’s Got Talent winner Lance Corporal Richard Jones.

Dyfan's proud grandad, Mike Griffiths, of Llay, said it was the opportunity of a lifetime for the youngster.

The courageous youngster suffers from a genetic disorder called chromosome 8 deletion. Out of the full range of chromosomes 1-48, Dyfan is missing 11-22.

Dyfan is the only UK case and there are only four others worldwide.

Mr Griffiths said: “Dyfan was over the moon when he was asked to do it, he loves that sort of thing.

“When he was born they didn’t know whether he would walk or talk and he had two holes in his heart as well.

“You can’t keep him down – he was up and walking by the time he was 18 months old but he does need a wheelchair because he gets tired easily.

“You can’t stop him talking either. His parents have been through a lot with him but he is a little soldier and everyone who meets him absolutely loves him – he’s a character.”

Dyfan travelled down to London with his parents Dean and Helen on Saturday and has been hard at work in rehearsals ahead of the performance last night.

Helen said: “He is very excited but he’s not nervous at all. Rehearsals have gone really well and it’s a lovely performance.

“Tom Fletcher has been wonderful. He came to the hotel to rehearse to make things easier for Dyfan and he drew him a picture of the Christmasauras and signed it, along with a copy of the book.

“I will be behind the scenes watching – Dyfan has been amazing and he has done us all proud.”

The Royal Variety Performance is due to air on ITV later this month.

It has been staged since 1912 and is now watched by over 152 million TV viewers worldwide, making it the most successful and longest running entertainment show in the world.

Comedian, actor and children’s author David Walliams hosted the event in the presence of Their Royal Highnesses The Prince Of Wales and The Duchess of Cornwall.

For more news from across the region visit leaderlive.co.uk

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  1. Posted by: Katy Jones at 18:15 on 07 December 2016 Report

    I don't wish to make light of it, but you have gotten the description of Dyfan's genetic condition very wrong. I would suggest that you go back to the family and get the correct one because this may be very significant to them. Just for starters, people only have 46 chromosomes and you cannot be missing chromosomes 11-22. It is a wonderful story and I am looking forward to seeing him!

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